We’re on the countdown… 

Read This. Any and all moans I make about parenting are insignificant nonsense.

Being Amber's Mum

So… here goes. What happened at Great Ormond Street. I’m sorry it’s taken me so long to post, I know many of you have been wondering what went on. Thank you for the support you have shown ❤ It’s taken us a while to get our heads around it all to be honest!

It’s taken over a year of tests, lots of seizures, many tears, sleepless nights, days off school, lots of wine, never ending research, but Amber is now on the waiting list for Epilepsy Surgery at Great Ormond Street Hospital.

We have spent many hours chatting with family, each other, the hospitals, school and friends, and decided to go forward in the hope it will improve Amber’s quality of life and improve seizures.

Last week Great Ormond Street informed us that Amber has ‘Cortical Dysplasia’ (have a google – I’m still getting my head around it) as well…

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